DD Family Members Archives - CreateAbility Inc https://www.createabilityinc.com/category/ddfamily-member/ Enabling Technology for People With Intellectual Disabilities, Traumatic Brain Injuries, Autism and Dementia Mon, 04 May 2020 20:35:16 +0000 en-US hourly 1 https://wordpress.org/?v=6.3.2 https://www.createabilityinc.com/wp-content/uploads/2018/02/favicon.png DD Family Members Archives - CreateAbility Inc https://www.createabilityinc.com/category/ddfamily-member/ 32 32 Care Providers: 5 Ways to Keep A Healthy Mental Outlook During the Pandemic https://www.createabilityinc.com/2020/05/04/care-providers-5-less-common-ways-to-refill-your-own-cup-after-pouring-yourself-into-others/ https://www.createabilityinc.com/2020/05/04/care-providers-5-less-common-ways-to-refill-your-own-cup-after-pouring-yourself-into-others/#respond Mon, 04 May 2020 19:56:57 +0000 https://www.createabilityinc.com/?p=1889 One thing is certain in these times: being a soldier on the frontline of a war and being a care provider during a pandemic both manifest forms of stress that bear a strong resemblance to one another. It’s more important than ever to try to remain mindful of your mental and physical well-being during these...

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One thing is certain in these times: being a soldier on the frontline of a war and being a care provider during a pandemic both manifest forms of stress that bear a strong resemblance to one another. It’s more important than ever to try to remain mindful of your mental and physical well-being during these times as you may work longer hours, witness/experience more traumatic events, and live in more uncertain conditions than before.

As you pour yourself into others, try to remember to keep your own “cup refilled” by devoting time to self-care. Here are self-care suggestions to may provide inspiration during these times:

1.) Give yourself permission to take time off for self-care; time to do whatever it is that your heart desires. Put it on your calendar, set reminders, and let others know that this is YOUR time to decompress however you see fit. There is NO reason to feel guilty designating self-care time; you need to be able to sustain the care you provide during this time.

2.) First and foremost, in the heat of what feels to be a battle, it is so important to know that THIS IS TEMPORARY. Hard to see in times of struggle, we know – but true, nonetheless. While we do not know when successful treatments will be found, a vaccination invented, when things return to “normal” (or what the new normal even looks like), on thing is for sure – we will not live in this current state forever. Breathe and hang tight.

3.) If you are comfortable with it, accept help from those who offer it to you. For many who aren’t on the front line, it’s a love offering in a time where they too, feel out of control. Let someone deliver your dinner, mow your yard or pick up your groceries for you. You are important in this time and deserving of attention and it gives you more time to take care of yourself.

4.) Try not to isolate yourself; while you may feel alone, there are most likely others experiencing similar emotions you can talk to. Find a person (even if it’s just a single person), to talk to, cry or laugh with. However, you need to unload the baggage that has accrued at work – make sure you find an outlet to help you unpack it and diffuse some of the heightened emotion these times manifest.

5.) Look for the joys in every day. That’s right, joys are still happening in the world; they just might be a little harder to see through the lens of COVID-19. Be still and present; reconnect with your environment, nature, and the people around you. You will find beauty. Even if you find a single joy per day, journal each and string them together to form a bridge of hope that will help you get to the other side of this pandemic.

We will get through this together – and the CreateAbility Team is here to help you in any way that we can. Please do not hesitate to reach out to us. We are here and waiting to support you!

 

Similar Reads:  4 Assistive Technology and Remote Monitoring Solutions for COVID-19 Transmission Reduction

 

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A Day in the Life of an Individual with Executive Functioning Issues  https://www.createabilityinc.com/2020/01/07/a-day-in-the-life-of-an-individual-with-executive-functioning-issues/ https://www.createabilityinc.com/2020/01/07/a-day-in-the-life-of-an-individual-with-executive-functioning-issues/#respond Tue, 07 Jan 2020 15:03:20 +0000 https://www.createabilityinc.com/?p=1776 Meet Carl, a 21-year-old with executive functioning issues. This doesn’t mean he isn’t smart. It means his brain’s self-management system has trouble getting organized and getting things done. Executive functions are an important set of mental skills. To see how trouble with these skills affects people like Carl in educational, recreational, vocational and residential settings,...

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Meet Carl, a 21-year-old with executive functioning issues. This doesn’t mean he isn’t smart. It means his brain’s self-management system has trouble getting organized and getting things done.

Executive functions are an important set of mental skills. To see how trouble with these skills affects people like Carl in educational, recreational, vocational and residential settings, take a look at a typical day in his life and how it can be changed through the use of assistive technology:

Transition or young adult without CreateAbility’s solutions Transition or young adult with CreateAbility’s solutions
Carl’s circle of support printed picture lists and checklists for him to follow each day at home, and his boss made a laminated binder that he can flip through when he gets stuck. This took a lot of time and effort to create, and so even though the home and work schedules and processes have changed over the last few months, these documents have not been updated. This is confusing to Carl, but he tries to get by. Previously, the residential staff in his group home defined the various morning tasks for Carl to get ready in the morning, as well as the chores for him to perform when he arrives home.

A team, consisting of his therapist, direct support staff defined the various areas in Evalu8Now that Carl needs to keep in check, such as his diet and activity level to help Carl manage his diabetes, and behavioral health issues (such as anger, depression, anxiety, and sleep quality). These are seamlessly presented on his CreateAbility Coach App.

7 a.m.

As Carl tries to remember his morning routine, he darts out the door, but knows he’s forgetting something. Ah, that’s it—his lunch box. He runs back inside to get them, but he ends up leaving his backpack on the kitchen counter as he races back out to catch the bus.

He sprints past the checklist that helps him remember what he needs for each day. But it’s too late: The bus is about to pull away. He’s going to miss it again….

Related executive function challenges: Organization, using working memory

7 a.m.

In addition to following his morning routine with MeMinder, Carl answered the morning questions presented on his CreateAbility Coach app as he ate his breakfast.

Carl then grabbed his lunch box and backpack as he headed out the door to catch his ride to work.

Carl always has his checklist with him, as the MeMinder talking pictures to-do list and his CreateAbility Coach app both run on his favorite mobile device.

8 a.m.

Carl’s class instructor notices that Carl is late again and didn’t turn in his take home quiz. She asks Carl about this and he tells her that he did the assignment but forgot it at home when he forgot his backpack.

Carl’s instructor asks, “Who has a good answer to the first question I gave you yesterday about last night’s reading assignment?” Carl squirms, hoping he won’t be called on. He didn’t write the questions in his planner and has no idea how to answer them.

Related executive function challenges:  Organization, focus

8 a.m.

Previously, Car’s instructor checked CreateAbility’s IEP section in BEAM, to see that his tutor helped him last night. She posts a note to the circle-of-care on the next assignment and due date.

 

Carl arrives to class on time and turns in his take home quiz.

 

Because the link to the reading assignment was in BEAM, Carl’s tutor reminded him of his reading assignment, and he was prepared in case he is called on in class.

11 a.m.

Carl’s supervisor reminds Carl that this is the second time this week that he has forgot his binder to work, as this was in his backpack too.

He tells Carl to try and shadow one of the other employees in the stock room today.

His boss calls Carl’s job coach and reports the problems he is having with Carl’s performance.

Related executive function challenges: Organization, focus

11 a.m.

Previously, Carl’s boss dictated the work assignments for Carl into CreateAbility’s cloud service which did a task analysis and created the incremental steps, sequences and chaining between each step. These are automatically delivered to Carl’ MeMinder App.

Carl’s job coach was pleased at how quickly he was able to fade and turn his attention to other employees. Carl’ boss has also been impressed with how organized, reliable and consistent he has been with each new assignment.

Since he has been using MeMinder, Carl also seems more focused, and less likely to get stuck on a task with the built-in timers for each step that gently instructs him to move on.

12 p.m.

It’s the best part of the school day: lunch! But Carl hogs the conversation, talking way too loud and too much about his video games. He doesn’t notice how annoyed his friends are getting.

Related executive function challenges: Keeping track of what you’re doing, self-control

12 p.m.

It’s one of Carlo’s favorite parts of the day, where he gets to hang out with his friends at lunch.

Carl is getting much better at self-control and listening to others versus hogging the conversation. This is because Carl has been practicing proper behaviors in group settings with his CreateAbility Coach App that offers assessments and interventions.

He is more in tune with other people’s emotions. When it’s his turn to talk, he keeps better track of what he’s doing and does not talk too much or too loudly.

4 p.m.

In soccer, Carl is so focused on getting the ball that he doesn’t keep in mind which direction he’s supposed to run once he gets it. He quickly heads for the nearest goal and kicks the ball—right into his own team’s net.

Related executive function challenges: Shifting focus, thinking flexibly

4 p.m.

On his way to soccer practice after work, Carl listens to a recording of his coach that gives him clues on his position, how to kick properly, and how to tell the direction of their goal. He also listens to an intervention on how to shift focus and think flexibly.

Later, when playing, he was prepared on how to shift focus, and knows which way to run, and when the ball comes to him, he knows where to kick it.

6 p.m.

Back at home, Carl isn’t happy when the residential staff tells him to turn off the TV and set the dinner table. When he thinks he’s got it right, his roommate makes fun at him for once again forgetting to give each person a cup. He was already frustrated with his day, and with missing his TV show and getting made fun of again – Carl loses his cool and screams at his roommate.

Related executive function challenges: Managing frustration, keeping emotions in check

6 p.m.

Carl isn’t happy when the residential staff tells him to turn off the TV and set the dinner table. He still gets frustrated with his day sometimes, and now he will be missing his TV show.

So, Carl grabs his phone and taps on the CreateAbility Coach App to help him get a clearer picture of the situation. After going through the guided self-regulation exercises, he taps on MeMinder again to remind him of the sequence of steps to properly set the table and other chores.

Carl still gets frustrated with his roommates sometimes, but he has been practicing on managing frustrations, keeping emotions in check, building relationship and self-management skills while he was in calm (teachable) states.

Now Carl can go to his favorite place, his room, and tap on the CreateAbility Coach App to help him reframe the frustrations of the day and re-focus his thoughts on actions that are in alignment with his goals.

7:00 p.m.

After lots of prodding from his tutor, Josh sits down to do his homework. But he doesn’t know where to start. Instead of doing the book report or the math problems that are due tomorrow, he surfs the web to find a topic for his science report that’s due next week. Then he takes a break to play a video game.

Related executive function challenges: Setting priorities, starting tasks

7:00 p.m.

After dinner and chores, Carl sees that he still needs to complete his homework. He would sure rather play video games. However, because Carl has been practicing with setting priorities and initiating tasks with his tutor and his CreateAbility Coach app, he realizes that he will be better off when his homework is completed on time.

Because CreateAbility’s cloud also includes tracking of Carl’s support system as part of his IEP, each person in his support plan knows what to do, and when to do it. Tutors know when their skills are needed for each subject.

8 p.m.

When Carl finally starts his assignments with his tutor, his mind keeps jumping from one thought to another. He can’t figure out what to write and only gets one sentence down on paper before he gives up for the night. He thinks he can do more on the way to school tomorrow—even though he’s never gotten anything done while riding the bus.

Related executive function challenges: Paying attention, staying on task, organization

8 p.m.

MeMinder and CreateAbility Coach help Carl practice paying attention, staying on task, and organization.  Carl selects the anxiety relief mindfulness exercise, which helps him focus on the now, and calm his thoughts.

He is now ready to work with the tutor on his assignments.

Later, Carl prepares for the next day by laying out his clothes and packing his lunch.

Midnight

It’s way past his bedtime. Carl is exhausted. He tries to go to sleep, but he can’t shut off his brain. He keeps worrying about disappointing so many people throughout the day and getting teased by his teammates for kicking the ball into the wrong goal.

Related executive function challenges: Anxiety, keeping emotions in check

Midnight

Carl is sleeping. Two hours before bedtime he used his Evalu8NOW app to help him prepare his mind and his environment for a good night’s rest. As he crawled into bed, he tapped the CreateAbility Coach app and selected Sleep. This app turned off the screen as a gentle voice auto advanced through a gentle mindfulness technique to help him release the days tensions and thoughts.  This helped him nudge his mind into acceptance and peace.

On-going

Carl’s circle of support worry that Carl may lose another job or need to find a different housing arrangement. Things just don’t seem to be working out with the current plan and environment.

On-going

His circle of support routinely monitors Carl’ progress on the job, at home, school and the community. The rich reporting and documentation from CreateAbility’s cloud provides the information for the team to make informed decisions during the periodic conferences.

About Executive Function

Many people who learn and think differently have trouble with executive function. Many individuals with ADHD or post brain injury struggle with it.

These difficulties don’t mean they aren’t smart. Brain differences make it hard for people like Carl to focus, set goals, get started, and stay on task. This includes things like doing chores, work tasks, homework and daily routines.

These kinds of struggles are often misunderstood. Others may think that people with executive function issues are just being lazy or aren’t capable of doing more. But with the right support, people with executive functioning issues can thrive.

There are lots of ways to help at work, home and in school. Support can help people like Carl get organized and stay on top of assignments. It can also help them feel less stressed and more confident.

More About Executive Function

Executive functioning issues are difficulties with a set of mental skills that are key to learning. Kids who have trouble with executive function often struggle with working memory, flexible thinking, and self-control.

What Are Executive Functioning Issues?

Some people describe executive function as “the CEO of the brain.” That’s because these skills are what let us set goals, plan, and get things done. When people struggle with them, it affects them in all aspects of life.

Trouble with executive function isn’t a diagnosis or a learning disability. But it’s common in kids who learn and think differently. All kids with ADHD have trouble with it. And lots of kids with learning disabilities struggle with executive function.

The three main areas of executive function are:

  • Working memory
  • Cognitive flexibility (also called flexible thinking)
  • Inhibitory control (which includes self-control)

Executive function is responsible for a number of skills, including:

  • Paying attention
  • Organizing, planning, and prioritizing
  • Starting tasks and staying focused on them to completion
  • Understanding different points of view
  • Regulating emotions
  • Self-monitoring (keeping track of what you’re doing)

Signs That an Employee or Roommate is Struggling With Executive Function:

Trouble with executive function can affect people in different ways. Some individuals may have difficulties in only one or two areas, or in all of them. The difficulties often look like the signs of ADHD. That’s because ADHD is a classic example of a problem with executive function.

People struggling with executive skills may:

  • Have trouble starting and/or completing tasks
  • Have difficulty prioritizing tasks
  • Forget what they’ve just heard or read
  • Have trouble following directions or a sequence of steps
  • Panic when rules or routines change
  • Have trouble switching focus from one task to another
  • Get overly emotional and fixate on things
  • Have trouble organizing their thoughts
  • Have trouble keeping track of their belongings
  • Not be able to manage their time

Acknowledgements:

This young adult perspective was Adapted from an NCLD infographic and an article on a day in the life of a 6th grader, based on the work of Thomas E. Brown, PhD.

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The Cyclical Effect of Sleep Deprivation on Caregivers and Consumers https://www.createabilityinc.com/2019/05/07/the-cyclical-effect-of-sleep-deprivation-on-caregivers-and-consumers/ https://www.createabilityinc.com/2019/05/07/the-cyclical-effect-of-sleep-deprivation-on-caregivers-and-consumers/#respond Tue, 07 May 2019 13:01:06 +0000 https://www.createabilityinc.com/?p=1663 Caregiver’s Perspective Being a caregiver is a high-demand role, period. While most develop their daily to-do lists, carefully checking off items as they accomplish them; caregivers of consumers with intellectual disabilities, TBI’s, and dementia typically experience a higher degree of variation from day-to-day in correlation to the mental state, physical health, and mood of the...

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Caregiver’s Perspective

Being a caregiver is a high-demand role, period. While most develop their daily to-do lists, carefully checking off items as they accomplish them; caregivers of consumers with intellectual disabilities, TBI’s, and dementia typically experience a higher degree of variation from day-to-day in correlation to the mental state, physical health, and mood of the person they care for. These changes require patience and adaptability that can cause exhaustion and fatigue in busy caregivers. In fact, Family Caregiver Alliance studies have documented that approximately 70% of caregivers report sleep problems, 60% report sleeping less than 7 hours, and 10-20% use alcohol or sleep medication to go to sleep.

Consumer’s Perspective

While we empathize for the caregivers need for self-care, the population of adults with intellectual disabilities who experience sleep deprivation is even greater than that of the general population. (Doran et al., 2006) Additionally, consumers with intellectual disabilities and dementia thrive in an environment where routine guides their daily responsibilities and stabilizes expectations. For dementia patients, consistent lack of sleep can decrease cognitive functioning and retention (Alzheimer’s Association) and for adults with intellectual disabilities, it impairs their ability to control emotions, attention, and motor skills.

When Sleep Deprivation Collides

When the caregiver has an “off” day with the person receiving care, and the daily to-dos are still there on the list waiting to be accomplished, it is commonplace to handle responsibilities in the time that the caregiver allotted for self-care and sleeping. In turn, the schedule of the person receiving care is off kilter, causing anxiety that, in turn, affects their ability to sleep.

Upon examination of the symptoms of sleep deprivation or unscheduled sleep time from both perspectives, it becomes evidently apparent that without a sufficient place and time to replenish the body’s need for rest – so as to lessen the odds for an “off” day. Ultimately, the culprit of the question, “Who’s inability to sleep is affecting this situation?” resembles the same answer to the question, “Which came first: the chicken or the egg?” (It doesn’t really matter; it is important for the BOTH of you.)

Increasing the Odds for Sleep Success

Below you will find some ways we recommend for creating a systematic approach to improved sleep habits:

Creating good sleep habits – The Basics: 

  • Designate a routine sleep schedule and stick to it each night.
  • Make the hour before you go to sleep your quiet time. (No TV or technology to allow your brain time to decompress.)
  • Create an inviting bedroom space with little clutter and comfortable bedding to induce better sleep.
  • Invest in light blocking shades so that you can sleep well at any, given time of the day. 

Embrace physiological rules for better sleep: 

  • Avoid caffeine in all forms for at least three hours before going to sleep.
  • Limit exposure to backlit screens for about an hour before going to sleep.
  • Eat your heavier meals earlier in the day.
  • Spend a set amount of time exercising and/or getting outside each time. Do avoid exercise too close to bedtime to allow physical adrenaline to subside.

Most importantly, make sleep a PRIORITY; not an option or variable in each day’s schedule. Scheduling/tracking your sleep are important factors for the health of both the person receiving care AND the caregiver. The power to make it happen, however, lies with the caregiver or the organization the caregiver works for.

If you are a caregiver would like information on how CreateAbility’s MeMINDER app can affordably and efficiently help you make (and keep) sleep a priority for both the caregiver and the consumer, click here.

 

 

 

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HomePortal and Voice-Enabled Microwave now shipping https://www.createabilityinc.com/2018/06/21/homeportal-and-voice-enabled-microwave-now-shipping/ https://www.createabilityinc.com/2018/06/21/homeportal-and-voice-enabled-microwave-now-shipping/#respond Thu, 21 Jun 2018 17:48:56 +0000 http://138.197.193.50/?p=1598 HomePortal brings the incredible power of a voice-controlled home to people who are blind, or people whose visual impairment interferes with typical daily activities needed to live independently. HomePortal couples CreateAbility’s “Sparkplug” skill with Z-wave modules to detect and control items in the home. Many commands and requests are possible, but here are a few...

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HomePortal brings the incredible power of a voice-controlled home to people who are blind, or people whose visual impairment interferes with typical daily activities needed to live independently.

HomePortal couples CreateAbility’s “Sparkplug” skill with Z-wave modules to detect and control items in the home.

Many commands and requests are possible, but here are a few typical examples:
“Alexa, tell Sparkplug to turn the fan on” (light, space heater, etc.)
“Alexa, tell Sparkplug to tell me when the dryer is completed”
“Alexa, ask Sparkplug to teach me the basics” (or, show me an example)

Deliveries to demo centers and Independent Living Centers have already started and the team is gearing up for orders to the general public.

One exciting new component of the HomePortal system is an Alexa-controlled Microwave.

Voice-Enabled Microwave

Being able to use something as simple as a microwave means so much more for the individual that isn’t able to see the buttons or person that has trouble pushing those buttons. To them, it was one more element of life that was not available to them before without assistance. With an interactive microwave, the user gains not only the function of an everyday appliance but the more important benefit of an added layer of independence.

Our interactive microwave utilizes Amazon Echo’s technology through CreateAbility’s Sparkplug system. Like Amazon Echo, the microwave responds to a full range of pre-established voice commands such as:
• “Alexa, tell Sparkplug to microwave pizza, 2 slices.”
• “Alexa, tell Sparkplug to microwave popcorn.”
• “Alexa, ask Sparkplug for the remaining cook time.”

Our special internal module doesn’t alter the microwaves original capabilities so everything else remains functional as well, simply enhanced. This makes it easy for others in the home to use the microwave in the typical way, via the front panel.

HomePortal was made possible through a Phase II grant from the National Institute on Disability, Independent Living, Rehabilitation Research (NIDILRR), grant # 90BI0022.

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Keeping Your Data Safe – Even in the Most Serious Attack on the Internet https://www.createabilityinc.com/2014/04/09/keeping-your-data-safe-even-in-the-most-serious-attack-on-the-internet/ https://www.createabilityinc.com/2014/04/09/keeping-your-data-safe-even-in-the-most-serious-attack-on-the-internet/#respond Wed, 09 Apr 2014 19:09:25 +0000 https://www.createabilityinc.com/?p=939 A dangerous flaw in a security technique that ironically was used to keep information safe has and will affect a lot of Internet users. Fear not. Clients, loved ones and healthcare professionals that use our technology can have peace of mind that their information on our systems is safe. You may have heard that there...

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A dangerous flaw in a security technique that ironically was used to keep information safe has and will affect a lot of Internet users.

Fear not. Clients, loved ones and healthcare professionals that use our technology can have peace of mind that their information on our systems is safe.

You may have heard that there is a major flaw in the security of the World Wide Web — one that has even Internet security firms feeling a little panicked, according to a recent article “Heart Bleed Bug Could Compromise Large Part of the Internet”.

We want you to know that CreateAbility’s systems and the data in them are safe.  Since our technology babysits your loved ones, we take this very seriously.

Fatefully, the most popular open source cryptographic library and data transport layer implementation that is used specifically to encrypt traffic on the Internet has a bug in it.  This bug enables hackers to steal password information by causing systems to spew the “secure” information held in RAM – allowing attackers to steal the information.

CreateAbility’s systems keep all of the user account and password information is an encrypted database, and not in RAM.

You can read more about this in the link below, but essentially a massive vulnerability has been found in OpenSSL by a team of security engineers at Codenomicon and Neel Mehta of Google Security (he’s essentially a super Ninja warrior when it comes to protecting data).

In geek speak – OpenSSL is the open-source software package broadly used to encrypt Web communications. The flaw allows attackers to steal the information that is normally protected by SSL/TLS encryption, which is used to protect Web applications, e-mail communications, instant messaging (IM) and some virtual private networks (VPNs).

Essentially, that means a lot of Internet users are affected. And potentially, passwords, private communications and even credit card information could be available to hackers courtesy of this newly-discovered bug.

For more nformation about Heart Bleed, See:

http://beforeitsnews.com/business/2014/04/heart-bleed-bug-could-compromise-large-part-of-the-internet-2612796.html

 

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